Sunday, March 23, 2008

My New Look...


When we brought Elli home in January we were told that she might need to stay on oxygen for a few months if not for the year. We were at least planning on having her on oxygen until it was much warmer outside. Well, once again Elli has proved what a little trooper she is. After being on oxygen for only 2 and 1/2 months she is done. Isn't she lovely!? It is so nice to be able to look at her precious face without all the extra stuff.

Elli is enjoying the freedom too. No more blasts of water shooting into her nose sending her into sneezing fits. No more painful removals of the little cheek tabs that held the cannula in place. No more yanks or tugs on the cannula from people tripping on her oxygen hose. No more sore nostrils from the cannula rubbing against her nose. No more indents on the head from laying on the cannula. I do think that she misses holding onto the cannula behind her left ear though. She had recently started hanging onto it while she is eating, now she plays with her ear instead. She seems to be sleeping a little better, and she doesn't scratch at her face like she used to. I think she is really happy to be done.

She is still hooked up to her apnea monitor, which monitors her breathing and her heart beat. She will keep that for another month just to be sure that she is really ready to be off oxygen, and that she doesn't have any other issues. She hasn't had any legitimate alarms on the apnea monitor in over a month though. She's doing great!

Good job Elli! Keep on beating the odds!

Now we just need her to have this kind of success with her eating and gaining weight. She is eating a little better, but sadly it hasn't shown in her weekly weights. Last week she only gained 1.6 oz. which puts her at 9 lbs. 14.4 oz. Hopefully we will see her break the 10 lb. mark this week.

Thanks for all your prayers. They are being heard and answered.

3 comments:

Christy said...

Wow!! She looks so much like Bradley but way more feminine (of course). I am so thrilled to hear that she is thriving. We will keep praying for her to become a ravinous eater.

Marianne said...

It's so nice to see her cute face! She really is beautiful. She really does look great!

Maleen said...

She really is lovely. What an amazing little spirit. I can imagine her running around, going to school, riding a bike and it seems impossible that she started so small. But she is a miracle.